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You can view a video and news story here: www.connecttristates.com/news/…

Second part of the video: www.youtube.com/watch?v=KURQli…

You can sign this petition here to help spread awareness: www.thepetitionsite.com/2/plea…
The goal is 1,000 signatures! We can make that!

Please read Rachel's story below, check out her sites and the cafepress store and/or order prints directly through me. If you have no money at least spread the word. Please. Rachel's condition is worsening and without your help, she will die.


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Rachel Phillips was a beautiful dancer who preformed in places like the Royal Ballet of London, the Kirov in Russia, the Nashville Ballet, Ballet West in Salt Lake City, Utah and many others. That was until she started experiencing symptoms of Ehlers-Danlos Syndrome and now the physical disorder that once gave her the ability to hyperextend, helped give her talent in being a beautiful dancer is now taking her life.

Ehlers- Danlos Syndrome is a genetic condition that effects the way your body produces collagen, or the "glue" of the human body. This is the same condition that I suffer from and something like this could potentially happen to any sufferer.

Rachel now lies in a hospital, barely able to take a breath because her airways are 90% collapsed due to severe tracheobronchomalasia, a condition that causes trachea and bronchial airways to collapse (brought on by her EDS). There is hope though. A doctor in Stockholm, Sweden is willing to do an experimental procedure, using Rachel's own stem cells to grow an airway replacement for a transplant that could save her life. Rachel's only hope is to get to Sweden for this procedure but she needs help. Please help Rachel breathe. Without this surgery, she will die.

For more information about Rachel, please check out her website where you can donate or just help to spread the word: helprachelbreathe.com/

Facebook Page: www.facebook.com/groups/198660…

For more information about the procedure: www.ny1.com/content/ny1_living…

Cafepress store: www.cafepress.com/zebrasneedze…

Or email *Ogrefairy ogresarelikeonions@gmail.com. For prints
See her work: ogrefairy.deviantart.com/


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If you have any questions about how you can help in other ways, please comment here or send me a note. Rachel needs your help. She does not have to die.

Original Journal entry ogrefairy.deviantart.com/journ…

THANKS.
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:icongoddessofcelestial:
GoddessofCelestial Featured By Owner Dec 3, 2012  Student General Artist
i have PWS (Prader-Willi Syndrome)
Reply
:iconsyntheticinnocence:
SyntheticInnocence Featured By Owner Aug 9, 2012  Professional Traditional Artist
Also I am attempting to share my story, from the beginning in my journal on DA but it is slow going since I can only type one handed. lol... if you are interested in reading it stop by my page.
Reply
:iconsyntheticinnocence:
SyntheticInnocence Featured By Owner Aug 9, 2012  Professional Traditional Artist
anyone here have vater syndrome? I do, also have chiari 1.
Reply
:iconsteeephanie:
Steeephanie Featured By Owner Jul 12, 2012  Hobbyist Traditional Artist
I have Cystic Fibrosis.
Reply
:iconhidden-kitten:
hidden-kitten Featured By Owner Feb 2, 2012  Hobbyist Artist
I sponsor a Ukrainian orphan who has spina bifida. My goal is to raise his funds to 10k before he becomes child of the month at tenfororphans.org

If you can, would you please donate or share his page with friends? He MUST find a family within the next 2 years or he will become ineligible for adoption and remain bedridden for the rest of his life :( He also needs surgeries that cannot be performed in his country. You can view him/donate here [link] Thanks so much!
Reply
:iconx--stardust:
x--StarDust Featured By Owner Dec 17, 2011
I was born with Ectodermal Dysplasia
Reply
:iconmerclavette:
merclavette Featured By Owner Dec 4, 2011  Hobbyist General Artist
I have Marfan syndrome.
Reply
:iconcolbalt-rain:
colbalt-rain Featured By Owner Nov 28, 2011   Writer
I was just diagnosed with Childhood Conduct Disorder, and am a shoo-in for ASPD when I turn 18. And even they're personality disorders, they're both determined more by my genes than by my enviornment. Do these count for 'genetic disease'?
Reply
:iconmerclavette:
merclavette Featured By Owner Dec 4, 2011  Hobbyist General Artist
Doctors thought that I have conduct as a kid, but I ended up getting diagnosed with Aspergers and Borderline personality instead. I'm pretty sure my Dad has ASPD though, and I have a lot of the traits. I'm not 100% sure, but I think it can be genetic.
Reply
:iconlilithdash:
LilithDash Featured By Owner Aug 5, 2011
The origin of multiple sclerosis is multifactorial, researchs are still on their way even for this specific point. It doesn't follow Mendel's laws, but it is nevertheless possible that several genes are involved.
[link]
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